Carrie Quinn, a mother of a 2-year-old toddler, was in her best health until late twenties, when she first began to notice strange symptoms which were all leading her to believe that something was not quite right with her.
She had developed lymph nodes in different parts of her body including her face and armpits, but she assumed that an allergy was causing her body to swell up and act strangely.
Noticing Strange Symptoms
When Quinn first visited her doctor, she was sent off for a biopsy. However, all her medical tests turned out normal. The symptoms began to disappear with time and she soon forgot that something had ever been wrong with her.
But, unfortunately, the swelling in her lymph nodes returned years later when she was in her early thirties and holidaying around Jamaica. Quinn also began to notice other symptoms like nausea, muscle weakness, and headaches which were becoming more severe with each passing day.
The horrified mum wound up in a doctor’s clinic once again, but just like last time, the medical tests didn’t show any signs of infection, allergy, or disease. What the tests did show was that Quinn’s gallbladder was malfunctioning, and could be the cause behind her declining health. However, things didn’t get any better after she had it surgically removed.
One morning, she woke up with a strange tingling sensation that was taking over her body as if someone was draining all the energy out of her. Even walking or carrying her 2-year-old toddler was becoming a struggle for her.
Quinn was feeling frustrated because she knew that something was wrong with her but none of the medical tests were picking up on anything strange. The symptom continued to get worse with time and the weakness became so bad that she had to hold the railing while walking up the stairs.
Quinn was no longer able to perform the most basic of tasks such as going to the supermarket since she didn’t have the energy to push around a cart or carry the groceries.
She eventually quit her job as well and had to recruit the help of other family members and a nanny to look after her toddler and the house. But none of the doctors were able to solve the mystery behind her declining health. Quinn went to almost every specialist in the city but every doctor assumed that she was suffering from anxiety or some sort of a mental disorder.
A New Doctor, A New Diagnosis
So, she decided to take it upon herself and research some other specialists in her area who could tell her what was really wrong with her health. She eventually stumbled upon Louis Malinow who was part of the Medical concierge network.
She decided to give him a call to set up an appointment. The therapy which cost $500 per quarter, was much higher that what Quinn would pay for a regular specialist, but the price tag was worth it since Malinow was able to piece together her symptoms and solve the puzzle unlike any other doctor Quinn had visited in the past several months.
After looking at Quinn’s reports and listening to her symptoms, Malinow was able to diagnose her with Undifferentiated Connective-Tissue Disease (UCTD), a rare autoimmune condition which attacks and weakens the connective tissues in the body. UCTD is extremely hard to diagnose but not impossible to treat.
Now, Quinn feels much better than she did three years ago when the symptoms had reemerged, but she isn’t as healthy as she was before she developed the condition.
Researchers aren’t sure why some people develop UCTD in late years of their life but many speculate that a number of heredity and environmental factors could be the cause behind it.